In 2019, our family received devastating news: my grandson Shepherd was diagnosed with Duchenne muscular dystrophy, a rare and fatal disease.
Duchenne is an aggressive muscle-wasting disorder that begins with the larger muscles in the legs and eventually attacks the smaller muscles in the heart and lungs. Most boys diagnosed with Duchenne lose the ability to walk by age 12, and many lose their lives in their late 20s.
Receiving this information was unimaginably heartbreaking. As a parent and grandparent, I felt compelled to become a beacon of hope, using my voice to spread awareness and rally support.
After extensive research and careful consideration, I connected with CureDuchenne, a nonprofit founded by Debra and Paul Miller, whose personal story resonates deeply with ours.
Over the past twenty years, CureDuchenne has advanced the most promising research and treatments, extending the life expectancy for those living with Duchenne by nearly a decade. But that’s not enough for Shepherd and the almost 15,000 boys and young men battling this disease in the U.S. alone. The cure is within reach, but we need your assistance.
Help us raise funds at an unforgettable event, CareDuchenne Champions in Dallas, where your taste buds will embark on an adventure at DHV ArtWorks. The evening will feature exquisite flavors crafted by renowned chefs, including Chef Dat, Chef Jon Stevens, Chef Mark Wootten, and Chef Scott Girling, from their top Dallas restaurants. Enjoy wines from Simon Family Estates and REWA Vineyards and live music from the magnificent Dallas String Quartet. Business leaders, influencers, entrepreneurs, and philanthropists will gather, all committed to making a difference.
This event is crucial in supporting CureDuchenne’s mission to invest in cutting-edge research and discover a cure for those affected.
CureDuchenne is committed to improving lives by accelerating research, enhancing care, and empowering the Duchenne community. Your support drives transformative programs that offer hope and improve care for thousands who desperately need it.
Join us on October 3 for Champions in Dallas, and help us accelerate a cure for the 15,000 boys and young men living with this disease in the U.S.
CareDuchenne Champions in Dallas
Where: DHV Artworks | 2835 Irving Blvd. Dallas
When: Thursday, October 3 | 7 – 9 PM
Cost: CLICK HERE for individual tickets and sponsorship opportunities.
Web: Visit HERE to learn more about CureDuchenne and this devastating progressive disease.
